It's back to square one. I shit you not! Was told today by another doctor making his rounds today that hubby has to live with his leg pain. IF he has more stomach pain ...he will be given morphine for it. I wasn't told in what form, pill or injection into his IV ( which really is insignificant to me ). IN FACT...this doctor says ...THERE IS NO REASON for his stomach pain. All testing has come up EMPTY and he can go back to the rest home/rehab.
Hubby would only eat a small container of cheerios at ten a.m.that I made him. I'm full, I'm full is all I kept hearing when I offered him the warmed up French toast His breakfast tray sat from 8ish on cause he wasn't hungry and wanted to sleep. He turned his nose up at his lunch ( a nice bowl of spaghetti with six meatballs ) that I would have loved to dig in to. I shit you not!
He wanted to sleep and I and anyone else that kept him awake were " the enemy."
AGAIN...these 3 doctors/interns questioned him about wanting to be rescuitated. He told the nurse during the night that he wanted to be rescuitated, they said to him. He was confused and didn't give a definate answer to them. They told him to think about it...he can always change his mind, it's his decision...no one elses. They also asked him if he was in pain and asked "where"when he said yes. My stomach, he told them. We'll get you something for that pain he was told. I left an hour later and IT DIDN'T HAPPEN. Every once in awhile he would say to me, they're getting me something for the pain. I'd repl "yes", but wanted to say "when pigs fly." When the nurse put socks on his feet his legs vibrated uncontrollably and he made cries of pain to her touches. Any touch to his legs or feet makes him grimace and yell in pain. Only oxy can be given to him for his leg pain I was told by this new to me doctor. Here we go AGAIN! One says he can be made comfortable and the next...he has to live with his leg pain. WHICH makes him want to give up on LIFE. I GIVE UP! When I asked his nurse about his UTI, she told me it wasn't a UTI , it was a VRE. Some virus...????? In his urine.
His Mercer is in his nose, (I asked so that I could give this vital info to the nursing home people should he go back there) and was told that he tested NEG this admission. Had one more test of a swab ? up his nose and if NEG....he is Mercer free.
I am confused now to say the least...about where this is all going to end. Yesterday he looked good, sounded good and was CLEAR headed...today he presented as his old self. Tired, not wanting to eat or watch tv or, or, or :0(
It tears me up to see him suffering, but I am helpless to help him. He doesn't have Cancer....whatever is wrong with his stomach that caused him so much pain Saturday that made him delirius....??? NO ONE KNOWS! Better than 12 hours of ( I DON"T KNOW WHY/THEY DON'T KNOW WHY) pain. WTF! So...if it's any comfort to me, if he gets THAT pain again, he can have morphine. Meantime ...continue to suffer with the neuropathy in his lower legs. I DON'T GET IT!
I want off this See Saw. When I left the hospital I wanted to drive off and NEVER come back. I feel DEFEATED....The pain being controlled was a LIE. Either it can be controlled....or it can't. Which one is it??? So what if he would sleep through lunch or breakfast ( if given stronger oxy ) ....he doesn't want to eat it anyway.
(((hugs)))
That's All Folks!
I AM WOMAN! Hear me ROAR! February 2012
WARNING !! Not for those with a short attention span. ; 0 )
to me it sounds like they are screwing around with his meds to much, doesn't seem like his body can adjust, and do you think he might have withdraws too ?
ReplyDeleteI don't know what to tell you , because i have no experience with medications like this, I just hope they figure something out. Big Hugs ♥
You must feel gutted, to have hope and then to have it dashed. Something must be causing the stomach pain, how frustrating to be told they can find nothing.
ReplyDeleteI don't blame you for wanting to drive off and never come back.
So sorry my friend. You sounded so upbeat yesterday on your second post. This pain is such a mystery.
ReplyDelete(((Hugs)))) and prayers coming your way.
Mary
Hi Pat,
ReplyDeleteFirst, great BIG {{{hugs}}}!!
I can totally understand about the pain in his feet and lower legs. I have neuropathy as a result of a back injury and fibromyalgia. The amount of pain I feel simply from taking my shoes off and allowing the breeze to blow across my feet can be amazing! It's gotten better though...
Several months ago, I read that there is an amino acid called Acetyl-L-Carnatine that showed promise in clinical trials with neuropathy pain due to diabetes. I don't have diabetes, but I felt I had no choice but to try it, or I'd never get any sleep at all. I cannot tell you what a huge difference it has made, and I definitely can tell, if I've forgotten a dose! On days that the pain is really bad, I just take 2 doses several hours apart.
I would recommend asking every single doctor, if you can bring some in for him, (you should be able to buy it at a health food store), until you get a YES! If they balk at the idea, ask them to PLEASE read the information on it!!
Here are some reviews about it from actual patients on WebMD, ( http://www.webmd.com/vitamins-supplements/ingredientreview-834-ACETYL-L-CARNITINE.aspx?drugid=834&drugname=ACETYL-L-CARNITINE )if you're interested in reading a little about it. For more information, just google Acetly-L-Carnatine and neuropathy, and if you get some, make sure you buy the kind with the L in it. It DOES make a difference in effectiveness!
I wish you all the best!
This is why he only needs one doctor! It has to be the V.A. hospital cause they will screw you around all day long. Three different doctors hog wash!! All they want to do is run test after test and then do it all over again. Pisses me off to no end, like I said I'm buying some opium so I wont suffer in the end. I don't even know what to tell you anymore. Sorry kid, Hugs, Pearl
ReplyDelete